Taylor Kane

Guest Contributor

Taylor Kane’s passion for rare disease advocacy began in grade school, shortly after her father died from ALD and she learned that she was a genetic carrier of the condition. Over the years, she has become deeply involved in the rare disease community, speaking at numerous rare disease-related events and contributing to a variety of campaigns as a thought leader and voice for the rare disease community. Taylor is the founder and consulting executive director of Remember the Girls, an international nonprofit organization which aims to break the stigma facing females with X-linked disorders. She is an award-winning activist, an accomplished speaker, and a respected author, having recently published a memoir, Rare Like Us: From Losing My Dad to Finding Myself in a Family Plagued by Genetic Disease. Taylor is also a paid consultant for Myriad Genetics®.